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Cure SMA Press releases

1 - 10 of 46 Press Releases

Mar 19, 2019
Leading rare disease patient advocacy organizations will use real-world evidence to advance research, drug development, and access

Oct 18, 2018
Groundbreaking single-dose therapy will have live-saving impact for infants affected by spinal muscular atrophy.

Oct 09, 2018
Cutting-edge clinical data registry will help drive improvements in care for the leading genetic cause of death for infants under two years of age.

Aug 15, 2018
Legislation will help promote life-saving treatment of the leading genetic cause of death for infants under two years of age.

Jul 06, 2018
Recommendation will help promote life-saving treatment of the leading genetic cause of death for infants under two years of age.

May 11, 2018
Legislation will help promote life-saving treatment of the leading genetic cause of death for infants under two years of age.

Feb 28, 2018
Cure SMA is extremely pleased to announce a generous $620,000 gift has been made to the organization. The donation was made anonymously in honor of William N. Kanehann. Billy had SMA and died in 2013 at the age of 23.

Feb 08, 2018
Recommendation will help promote life-saving treatment of the leading genetic cause of death for infants under two years of age.

Jul 10, 2017
Legislation will help promote life-saving treatment of the leading genetic cause of death for infants under two years of age

Jul 02, 2017
Cure SMA, a leading national non-profit organization dedicated to achieving a world without spinal muscular atrophy (SMA), along with partners in the SMA Newborn Screening Coalition, today announced the launch of a new grassroots advocacy campaign to...


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