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Project Alive Press releases

1 - 10 of 12 Press Releases

Dec 06, 2017
Families Are Making A Cure A Reality for the Rare Disease Hunter Syndrome / MPS II

Jul 27, 2017
Parents Trying to Help Fund a Cure For the Rare Disease Hunter Syndrome / MPS II

Jun 27, 2017
Parent Efforts Bringing Awareness to the Rare Disease Hunter Syndrome / MPS II

Oct 31, 2016
Parent-led fundraising efforts have donated over $500,000 to treat the rare disease Hunter Syndrome (MPS II)

May 02, 2016
Efforts Bringing Awareness to Hunter Syndrome Are Recognized by Telly Awards and International Songwriting Competition

Mar 28, 2016
"Alive" Focuses on Son's Fight Against Terminal Disease Called Hunter Syndrome

Oct 19, 2015
A rare disease foundation is launching a new initiative to encourage pharmaceutical and biotech companies to engage patients in their pre-clinical research and clinical trial design.

Jul 10, 2015
Parents of children with the rare disease Hunter Syndrome launched a compelling awareness and fundraising campaign with celebrity support including Seattle Seahawks head coach Pete Carroll and radio host Dave Ramsey.

Oct 12, 2012
The Fowler family recently relocated to the Chicago area to get specialized medical treatment for their son with Hunter Syndrome. Filmmaker Joey Howell will film them as a part of his documentary at Lurie Children's Hospital on October 16/17.

Sep 17, 2012
For the past year, documentary filmmaker Joey Howell has been filming a documentary called Boys with Bigger Hearts about the rare disease Hunter Syndrome. The project is raising funds via Kickstarter to finish the filming and production.


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