Project Alive

Vector Production and Active IND Meet Major Milestones in Foundation-Scientists Collaboration to Develop an Experimental Therapy for Young Boys with a Rare Dementia-Like Disease

Families Are Making A Cure A Reality for the Rare Disease Hunter Syndrome / MPS II

Parents Trying to Help Fund a Cure For the Rare Disease Hunter Syndrome / MPS II

Parent Efforts Bringing Awareness to the Rare Disease Hunter Syndrome / MPS II

Parent-led fundraising efforts have donated over $500,000 to treat the rare disease Hunter Syndrome (MPS II)

Efforts Bringing Awareness to Hunter Syndrome Are Recognized by Telly Awards and International Songwriting Competition

"Alive" Focuses on Son's Fight Against Terminal Disease Called Hunter Syndrome

A rare disease foundation is launching a new initiative to encourage pharmaceutical and biotech companies to engage patients in their pre-clinical research and clinical trial design.

Parents of children with the rare disease Hunter Syndrome launched a compelling awareness and fundraising campaign with celebrity support including Seattle Seahawks head coach Pete Carroll and radio host Dave Ramsey.

The Fowler family recently relocated to the Chicago area to get specialized medical treatment for their son with Hunter Syndrome. Filmmaker Joey Howell will film them as a part of his documentary at Lurie Children's Hospital on October 16/17.