Project Alive

For the past year, documentary filmmaker Joey Howell has been filming a documentary called Boys with Bigger Hearts about the rare disease Hunter Syndrome. The project is raising funds via Kickstarter to finish the filming and production.

To learn how to raise more awareness of and funding for research about her son's rare disease, Hunter Syndrome, mom Melissa Hogan wrote a moving essay to win a scholarship to the Mayo Clinic's Social Media Week events.

A lawyer turned caregiver to a child with a rare disease has authored an ebook to share strategies for preventing medical trauma in special needs children. Melissa Hogan's son has Hunter Syndrome, but a lot of joy despite a medically involved life.